Resources: Laws and Conventions

Genetic data:

UNESCO (2003). International Declaration on Human Genetic Data. 16 October 2003. http://www.unesco.org/new/en/social-and-human-sciences/themes/bioethics/human-genetic-data/

UNESCO (1997) Universal Declaration on the Human Genome and Human Rights. 11 November 1997. http://www.unesco.org/new/en/social-and-human-sciences/themes/bioethics/human-genome-and-human-rights/

Council of Europe (2008) Additional Protocol to the Convention on Human Rights and Biomedicine concerning Genetic Testing for Health Purposes. https://www.coe.int/en/web/conventions/full-list/-/conventions/treaty/203

Bioethics/human rights and biomedicine/health data:

WMA Declaration of Helsinki – Ethical Principles for Medical Research Involving Human Subjects. http://www.wma.net/en/30publications/10policies/b3/

UNESCO (2006) Universal Declaration on Bioethics and Human Rights. http://unesdoc.unesco.org/images/0014/001461/146180e.pdf

Additional Protocol to the Convention on Human Rights and Biomedicine, concerning Biomedical Research. Council of Europe Treaty Series – No. 195. http://www.coe.int/en/web/conventions/full-list/-/conventions/rms/090000168008371a  

Council of Europe Recommendation No. R (97) 5 on the Protection of Medical Data. 13th February, 1997. http://hrlibrary.umn.edu/instree/coerecr97-5.html